Dear all,
Me and Jalpa have decided to do 13 mile run, Yes Half Marathon. its a huge challenge, I never run so much. Will i be able to do it , only god will know. One thing is for sure the support that i am getting will be my battery power, you people are my battery.
its on Sunday 10th March 2019, around 20,000 people taking part
why am I doing this, not for myself but I feel we have to sow the future for Generations to come in all communties and all race. When a person is needing an organ – then Colour and creed of that organ never matters, as we know it going to help us live. Whilst we still argue about caste, religion and colour. inside we are humans. we shoould learn to live our duties and culture we believe in and respect all Human Being. That is important to the god up there.
I am raising money and awarness of my health but also money to go to kidney research. Why ? because there is no cure for kidney failure, you get dialysis and hope it give us chance to live a longer time to support your kidney that has failed. in the end only a transplant is good enough to give us any hope. That is also big risk it can fail.
my kidney works only 3% with out dialysis, with dialysis it makes it around 9 -10% that allows to me carry on with life bit more.
You will hear for heart – you can do bypass, pacemaker, stent etc.. with Kidney fails nothing is fixable. even when its declining you can preserve it with care but even then it can fail at any given time, due to medication , due to various things. WE need to help the future , this kidney research team is the only way, for them to find the breakthrough. it may not happen for me, but i know the money I raised will go towards that and the future generation then will benefit.
Ethinic Miniorites – are losing out on organs that perfectly healthy to use, but we seem not to sign up as organ donor after we die. This can be various reasons. I think we have to be pratical, its big thing to donate this to someone. IF you are alive and you donate 1 kidney, you will live longer they say or better, becasuse you ge tthe full Check up that you never would get otherwise.
I am so humbled that people are showering there support and love for me, How I will repay all these people back maybe next birth or birth after.
The day had arrived we got the to the marathon at 7:45am, all roads where closed. intially the weather was good then it turned to heavy run and wind before we even started, I was feeling very cold. I thought to myself oh dear how am I suppose to compete. The 1st thing i saw around me many people seemed like great runners and i felt should I even be part of this, someone like me how am i going to reach the end, then the rain stopped nthe wind stopeed, it was now 9am start time. as I went past the start line with Jalpa, I started to jog and we all went down in a tunnel before i knew it was already 2 miles I thought wow this seems good then my body was giving in at 2 miles and i thought okay I will walk bit for now, our challenege was to reach the final line within 4 hrs. I walked to from 2nd mile to the 3rd mile then jogged a bit around the 5th mile the wind got head coming towards must of been at least 45mph. My breathing became a problem i had to take one side to get my breat as the wind was causing me alot of problem. I was getting very scared as my body is light and I nearlly got flown and would of hit the wall. Jalpa held me tight, we stood one place the wind went down. we then took the plunge and said lets do this , we will battle the wind. we got past that, we reach i think it was 8th Mile. My fingers were sore and my legs were just giving way, i felt i had slown down in my fast walk. alot of people around me was now walking , I felt ok as i was not the only one. Lot of people running past me congratulated me gettign to the 8th mile on dialysis, thats when i thought my gosh 8 miles, all the way through I had dhun and kirtan by Bapa and Hare krishna Kirtan singers. my feet was feeling sore, my legs was now dragging, i just about made it to 10th mile, then I said to Jalpa no more I cannot move anymore, but then jalpa said its only 3 miles left you can do this, she held my hand and we started walk fast till the 11th mile, it was one tought mile I have to say.
we reached the 12th mile and i knew then we now just 1 mile away from huge achievement, I was walking and the people supporting was pushing me on to make till the end, as they could see i was total Pain, walking with pain but i needed to get to the finish line. I remember at the 150 meteres, jalpa was ahead of me and i tried to run the last 150 meteres but legs just could not do it. Jalpa came back and held me all the way through, the feeling when i saw the line, my fist and hands went in the air. My gosh thank god I have done it.
My recorded time was 3hrs and 36 mins. I was very please as we aimed for 4 hrs.
I did this marathon to raise money for kidney research UK.
Dialysis that i do is not a CURE. its a treatment which I do for 9 hrs every day and every night. Its very tiring treatment. Alot of people at the event was shocked I did this Marathon on dialysis.
Dialysis is great whilst the kidney can handle but the best option is as top treatment is Organ transplant that is a gold Treatment. we really need this a cure for Kidney Disease, so kidney does not fail.
Kidney research do alot of work as I have seen, some great work has been achieved but there is alot more to be done and not enough yet done. I urge people to support them.
Also we should also consider becoming a organ donor and yes people in Hinduism or various faith will have different view on this. I only ask this when you need a transplant or organ and I hope you never require it. You then think its perfectly okay to accept a organ, (How does that work?) does not effect religious views or thoughts. if you think for few mins from Hindu perspective. Our Soul is for ever, this body is just another outfit if that is the best way to put, a new clothing. When we did we believe we will reborn and take new body and new outfit. What use is the organs to you when you die, you cannot even hear anyone or speak to anyone, (I know this from my ICU time).
Then why the hold back to sign up to be organ donor.
In 2020 it become that everyone will get signed up , but think why should be we wait for that Law to come into place. Once that Law is in place. we still have to let our family know that our wishes is to donate or not to donate. Do speak to your family or Friends.
I hope that I can do more charity work in Kidney areas and able to go round and give talks and answer questions where possible.
Please do follow me on twitter
here are some pictures of the marthon
life of Dialysis 